A quick word on language, do not refer to autistic people as "having autism" like it's disease. Please refer to people on the spectrum as being autistic.
I am autistic, I do not have autism.
If I'd had a list like this before my assessment, then I would have better understood myself and been more at ease after receiving the phone call and subsequent letter. That is my aim, to make self-diagnosis and the pre-and-post assessment process of learning who you are as easy and informative as possible.
It was cathartic creating this, I hope it helps you understand yourself or the autistic person in your life.
If you spot any errors or omissions please report them to dj.dazbo @ gmail.com or on reddit I could really do with your help, thank you.
This will no doubt be a continuous work in progress.
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Co-occurring morbidity. Don't go to the worst place possible, it just means that conditions like Autism and ADHD also come with other conditions like OCD, Elhers-Danlos syndrome, acid reflux, irritable bowel syndrome, depression, sleep disorders, bipolar disorder and sadly many many more.
AAC Augmentative and Alternative Communication (AAC) refers to a range of strategies and tools that support individuals with autism who have difficulty communicating through speech. AAC can include anything from gestures and sign language to picture-based systems and high-tech communication devices. It aims to enhance communication, not replace natural speech, and can significantly improve social interaction and independence for autistic individuals.
Further reading: https://www.autism.org.uk/advice-and-guidance/professional-practice/aug-alt-comm
ABA Therapy Applied Behaviour Therapy
ABA therapy aims to remove the guards to social integration, it's tailored to the individual by improving positive behaviours and helping to reduce the negative behaviours.
Initially created by O. Ivar Lovaas, the same person who created gay conversion therapy, it has been and will be considered potentially dangerous in the long term. See Autism Masking.
Further reading: https://www.reddit.com/r/AutisticAdults/comments/18tnlqb/why_is_aba_therapy_considered_abusive_by_the/
https://www.autism.org.uk/advice-and-guidance/topics/positive-behaviour-support-pbs
Ableism also known as ablism, disablism, anapirophobia, anapirism, and disability discrimination is discrimination and social prejudice against physically or mentally disabled people. Ableism characterises people as they are defined by their disabilities and it also classifies disabled people as people who are inferior to non-disabled people. On this basis, people are assigned or denied certain perceived abilities, skills, or character orientations.
Further Reading: https://en.wikipedia.org/wiki/Ableism
Acid Reflux
Heartburn is a burning feeling in the chest caused by stomach acid travelling up towards the throat (acid reflux). If it keeps happening, it may be called gastro-oesophageal reflux disease (GORD). Individuals with ASD and GERD are also more prone to developing erosive esophagitis and esophageal ulcers.
ADHD - Attentions deficit hyperactive disorder.
Characterised by ongoing issues with focus, excessive energy, and difficulty controlling impulses. It affects both children and adults, and can make daily tasks and personal growth challenging. Symptoms include inattention, hyperactivity, and impulsivity, which can impair daily functioning.
Further Reading: https://www.mayoclinic.org/diseases-conditions/adult-adhd/symptoms-causes/syc-20350878
Alcohol. Many autistic adults do use alcohol and that they often use it to cope with the stresses of being autistic in a neurotypical world. Alcohol can become part of the “masking” and coping strategies some autistic people do to fit in with others. Eventually this can become a serious problem. Ask me how I know
Further reading: https://www.autism.org.uk/advice-and-guidance/professional-practice/autism-alcohol
Alexithymia
We have trouble with our emotions, recognising our internal emotions correctly or being so overwhelmed to the point we feel almost nothing, or difficulty simply describing how we're feeling. We also have a great deal of trouble reading emotions in other people.
Further Reading: https://www.autistica.org.uk/what-is-autism/anxiety-and-autism-hub/alexithymia
Alien Autistics often feel "different", like an Alien dropped on this Earth to just fit in. It's this feeling that forces me to internalise my differences and think on what makes me different and why.
Further Reading: https://www.autism.org.uk/advice-and-guidance/the-spectrum/spectrum-collections/alien-archive
Allistic is a term for a person or people who are not autistic.
further reading: https://www.neurosparkhealth.com/blog/what-does-allistic-mean
Ambidextrous Individuals with autism spectrum disorder (ASD) are more likely to be non-right-handed (left-handed or mixed-handed) than individuals in the general population. This atypical handedness is more prevalent in individuals with autism than in those with other developmental disabilities. While ambidexterity (the ability to use both hands equally well) is relatively rare in the general population, it may be more common in individuals with autism.
My experience: I thought ambidexterity meant I could use both hands to do the same thing, such as writing or football. In reality it means that I can write or shoot with my left, play snooker, cricket or golf with my right hand. It depends on the task. Some are left, some are right.
further reading: https://www.theguardian.com/education/2010/jan/26/ambidextrous-children-schools
Aphantasia
Aphantasia is the inability to visualise mental images. Some studies indicate that individuals with autism may be more likely to experience aphantasia, but this doesn't mean that aphantasia is a symptom of autism or that everyone with autism has aphantasia. Also see Hyperphantasia.
Further reading: https://www.sciencedirect.com/science/article/abs/pii/S1053810021000131
ARFID Avoidant/restrictive food intake disorder
Characterised by "picky" eating, restricting certain foods or preferring certain foods over others.
Children and adults with ARFID are extremely selective eaters and sometimes have little interest in eating food. They may eat a limited variety of preferred foods, which can lead to poor growth and poor nutrition.
AuDHD refers to autistic people who were given a further diagnosis of ADHD. Refers to AuDHD.
https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2022.837424/fullAccording to the scientific literature, 50 to 70% of individuals with autism spectrum disorder (ASD) also present with co-morbid attention deficit hyperactivity disorder (ADHD).
For further reading see: https://behavioral-innovations.com/blog/the-sudden-rise-of-audhd/
Autism
Autism is a neuro-developmental condition characterised by difficulties in social interaction and communication, as well as restricted and repetitive behaviors or interests. It is a life-long condition.
https://www.nhs.uk/conditions/autism/
Autism Assessment Scary times! An assessment can be anything from a couple of meetings to six sessions. Mine was an hour long video conference, followed up a few days later with an hour long in-person observational test. This second part left me feeling completely shell-shocked and very bewildered for a week. I won't go into why, that's a surprise, I will only say that this is meant to be a stressful examination, designed to push you into showing obvious autism or ADHD signs. Plus is helps remove people who are not on the spectrum as they would behave VERY differently. Just be warned, there could be some fallout for some time afterwards. This is normal, don't panic.
Autist is a term sometimes used to refer to a person with autism. However, many autistic individuals and their advocates prefer the term "autistic person" or "person with autism" as it emphasises autism as an inherent part of their identity.
Autistic auditory processing disorder APD refers to difficulties in processing auditory information, even with normal hearing, while ASD encompasses a range of developmental differences that can affect communication and social interactions. APD is a brain difficulty in processing sounds. See also Hyperacusis.
Further reading: https://www.autismspeaks.org/expert-opinion/auditory-processing-disorder
Autistic Elopement / Wandering refers to the tendency of individuals with autism to leave a safe environment or caregiver's supervision without permission, potentially putting them at risk. It's a common concern, with research suggesting that nearly half of children with autism engage in elopement behavior, often driven by sensory sensitivities, a desire to escape overwhelming situations, or to seek out something they enjoy.
Further reading: https://nationalautismassociation.org/resources/wandering/
Autistic Inertia Autistic inertia describes the difficulty many autistic people experience in starting, stopping, or switching tasks, similar to the physical law of inertia where an object at rest stays at rest unless acted upon by a force. This challenges executive functions, which are brain processes responsible for planning, initiating, maintaining, and switching between activities.
Right now I'm hungry as I type this, but I can't pull myself away to make something to eat.
Further reading: https://autismunderstood.co.uk/autistic-differences/autistic-inertia/
Autistic Life Expectancy. There is an Australian report which claims that men on the spectrum have an average life expectancy of 54 years and women 56 years. Imagine my distress when I hit 54 and was still waiting for an assessment.
Australian report: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Autism/autism/Report/section?id=committees%2Freportsen%2F024412%2F72470
However a report from the university college London found little difference for men and women without a learning disability, and for men with a learning disability the life expectancy only dropped by 3 years. Sadly women are a little worse off.
A quote from the National Autistic Society: https://www.autism.org.uk/advice-and-guidance/professional-practice/research-into-the-life-expectancy-of-autistic-peop
https://www.ucl.ac.uk/news/2023/nov/premature-death-autistic-people-uk-investigated-first-timeOn average, autistic men without a learning disability had an estimated life expectancy of 74.6 years, and autistic women without a learning disability had an average of 76.8 years.
For autistic people who also had a diagnosed learning disability, average estimated life expectancies were lower, with men having a life expectancy of 71.7 years and women having a life expectancy of 69.6 years. These estimates all have a degree of uncertainty, particularly for women due to the smaller numbers of women who have been diagnosed autistic.
Autism Masking Masking is something we all do, both neuro-typical and autistic, but on the spectrum it's about trying to hide our traits and quirks allowing us to better fit into society, which means we mask more and for longer. When you want to show excitement, by clapping or hand waving, you can't, you have to stop yourself. Why, because it's not acceptable or undesirable to neuro-typicals. We mask to make everyone else feel at ease with us.
The National Autistic Society has a very lengthy essay on masking, it's small benefits and catastrophic impacts of long term masking.
https://www.autism.org.uk/advice-and-guidance/topics/behaviour/masking
Autistic Perseverance/Perseveration Getting stuck in a loop. Perseveration makes it hard to get out of the current thoughts, making us ruminate constantly on our focus.
Thought loops:
Ruminating or getting stuck in negative thought patterns, such as worrying about the past or future.
Fixation on interests:
Continuously talking about or engaging in a particular topic or activity, to the exclusion of others.
Repetitive actions:
Performing the same physical movement or action repeatedly, even after the stimulus has stopped.
Repetitive speech:
Saying the same word or phrase over and over, or asking the same question multiple times.
Difficulty with transitions:
Finding it hard to stop an activity and switch to something else.
Further reading: https://www.autismparentingmagazine.com/perseveration-in-autism/
Autistic Traits refers to a series of conditions that autistic people have, like poor eye contact, social difficulties, and sensitivity to sight sound and smells.
Further reading: https://www.autism.org.uk/advice-and-guidance/what-is-autism